Next Wednesday (in 9 days), the doctors will be putting Jax under to once again look at his tumors. Depending on what they find, will depend on what the next steps are. We have chemo scheduled for the following week, yet everything is so up in the air.
Tonight Lillyana (like she does almost every night), prayed for Jax. She said "I pray for Jax's cancer. Please make the tumors tiny. From our loving hearts. Make them die. Do a miracle." That is our prayer. Please continue to pray that with us.
Jax is not feeling very good these days. He has a pretty wicked cold, which isn't surprising as his white blood cells count was low last week during labs. The problem with that, aside from the obvious of his body needing all of its energy, is that if he has a cold they could put off the eye exam. This we so do not want, as we desperately need to know the effect of the last round of chemotherapy.
Jax isn't himself these days, he's pretty unhappy and very clingy. Poor guy as he really seems to be trying to have a happy heart but he so very easily falls apart. Today I put him in the ergo and carried him for about 1.5 hours as he wouldn't let me put him down, and after school with 9 jewels is super involved and intense. He loved it and was a happy camper for the entire time. Poor guy.
By this Thursday we will have driven to Children's 4 times. To say that we are tired, doesn't seem suffice. We definitely feel like we are burning the candle on both ends. When one of us is at Childrens, the other one is home as a single parent with 8 kids (it taking about 2.5 hours one way to get to Childrens). Add on soccer, dance, track, homework, and TRAUMA ... it's crazy sometimes what we negotiate with schedule every day stuff AND emotionally when it comes to trauma, in just one day even.
We know so many of you are praying for Jax and our family. Thank you so much!! We all soo still need your prayer covering for protection. Our days are intense and full of blessings all at once, hard with God right in the midst of it. God is making something beautiful out of our chaos. God is picking us up every time we fall, and every time our heart is in a million pieces. I know what Sam and I are processing, I can only begin to imagine what our jewels are walking and processing. Please especially pray for them.
Our doctors did not expect for the tumors "to double and mutate," neither did we. Not even slightly. We really expecting for the tumors to be "almost gone." We will keep putting one foot in front of the other and will see what the next eye exam reveals.
Thank you Jax prayer warriors. We could not be doing this without you.
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